Act on a Mandate to Protect Research Subjects' Privacy

Publication Title

Science

Authors

Leslie Wolf, Georgia State University College of LawFollow
Natalie Ram, University of Maryland at BaltimoreFollow

Document Type

Article

Publication Date

2024

Abstract

The article reports on the mandate from the U.S. Congress for the coordination and expansion of Certificates of Confidentiality to protect identifiable research data from nonconsensual disclosure and maintain privacy. It discusses the implications of the failure of the U.S. Department of Health and Human Services (HHS) to implement the mandate for the quality of data collection. It cites ways by which the statutory obligations of the HHS are in conflict with the Congress' statutory command.

Recommended Citation

Leslie E. Wolf & Natalie Ram, Act on a Mandate to Protect Research Subjects' Privacy386 Science 1096 (2024).

Institutional Repository Citation

Leslie Wolf & Natalie Ram, Act on a Mandate to Protect Research Subjects' Privacy, Faculty Publications By Year 3675 (2024)
https://readingroom.law.gsu.edu/faculty_pub/3675

Volume

386

First Page

1096