1 00:00:08,360 --> 00:00:11,370 Hello, my name is Dr. Donald Ward. 2 00:00:11,370 --> 00:00:13,410 I am Ogallala Lakota, 3 00:00:13,410 --> 00:00:15,510 originally from a small town called Kyle, 4 00:00:15,510 --> 00:00:16,710 South Dakota on the Pine Ridge 5 00:00:16,710 --> 00:00:18,030 Indian Reservation. 6 00:00:18,030 --> 00:00:19,950 And a family physician 7 00:00:19,950 --> 00:00:21,420 and a number of hats at 8 00:00:21,420 --> 00:00:22,920 the University of North Dakota School of 9 00:00:22,920 --> 00:00:24,805 Medicine and Health Sciences. 10 00:00:24,805 --> 00:00:26,450 And the Associate Dean for 11 00:00:26,450 --> 00:00:28,475 Diversity, Equity and Inclusion. 12 00:00:28,475 --> 00:00:30,680 I'm the chair of our department of 13 00:00:30,680 --> 00:00:32,060 indigenous health and I'm also 14 00:00:32,060 --> 00:00:33,515 director of a couple of programs, 15 00:00:33,515 --> 00:00:35,210 the India's into medicine or 16 00:00:35,210 --> 00:00:37,130 embed program and also 17 00:00:37,130 --> 00:00:38,450 our public health program. 18 00:00:38,450 --> 00:00:40,910 So the topic that I want to cover, 19 00:00:40,910 --> 00:00:42,470 looking at things from 20 00:00:42,470 --> 00:00:45,230 an American Indian perspective and addressing 21 00:00:45,230 --> 00:00:48,695 bioethics is the longstanding underfunding 22 00:00:48,695 --> 00:00:50,495 of the Indian Health Service. 23 00:00:50,495 --> 00:00:52,385 And it's a little known fact. 24 00:00:52,385 --> 00:00:54,380 But in the United States, 25 00:00:54,380 --> 00:00:57,964 the right to health care is not universal. 26 00:00:57,964 --> 00:00:59,720 So we have a lot of people who do not have 27 00:00:59,720 --> 00:01:01,849 access to basic health services. 28 00:01:01,849 --> 00:01:03,845 And that's true for everyone in this country. 29 00:01:03,845 --> 00:01:05,960 Accept American Indians and Alaska 30 00:01:05,960 --> 00:01:07,445 Natives as 31 00:01:07,445 --> 00:01:09,140 American Indians and Alaskan Natives. 32 00:01:09,140 --> 00:01:10,640 We actually have a treaty right 33 00:01:10,640 --> 00:01:12,080 to health services. 34 00:01:12,080 --> 00:01:14,795 And those treaties are basically contracts 35 00:01:14,795 --> 00:01:16,820 that were between the tribal nations 36 00:01:16,820 --> 00:01:17,870 and the federal government. 37 00:01:17,870 --> 00:01:18,080 And there are 38 00:01:18,080 --> 00:01:20,105 several 100 treaties that were signed, 39 00:01:20,105 --> 00:01:22,025 primarily in the 1800s. 40 00:01:22,025 --> 00:01:23,840 And in those treaties, 41 00:01:23,840 --> 00:01:26,750 in exchange for land and natural resources, 42 00:01:26,750 --> 00:01:29,225 the tribes were promised health care. 43 00:01:29,225 --> 00:01:30,800 Got the typical language 44 00:01:30,800 --> 00:01:31,880 in those treaties was 45 00:01:31,880 --> 00:01:35,180 promise of all proper care and protection. 46 00:01:35,180 --> 00:01:36,680 And when we look at the history of 47 00:01:36,680 --> 00:01:38,915 funding of the Indian Health Service, 48 00:01:38,915 --> 00:01:40,250 we're not receiving all proper 49 00:01:40,250 --> 00:01:41,825 care and protection. 50 00:01:41,825 --> 00:01:45,140 So if you look at the numbers in 2022, 51 00:01:45,140 --> 00:01:48,320 we're getting about $4 thousand 52 00:01:48,320 --> 00:01:50,195 per patient per year 53 00:01:50,195 --> 00:01:51,905 in the Indian Health Service. 54 00:01:51,905 --> 00:01:53,705 To put that in perspective, 55 00:01:53,705 --> 00:01:56,030 the Medicare recipients are 56 00:01:56,030 --> 00:01:57,920 receiving well over $12 thousand per 57 00:01:57,920 --> 00:01:59,300 person per year and Akkad 58 00:01:59,300 --> 00:02:02,060 is $9 thousand per person per year. 59 00:02:02,060 --> 00:02:04,030 So Indian Health Service is funded 60 00:02:04,030 --> 00:02:06,305 about half of its actual need. 61 00:02:06,305 --> 00:02:08,510 One of our big challenges is that 62 00:02:08,510 --> 00:02:10,730 we have tremendous health disparities. 63 00:02:10,730 --> 00:02:12,709 In North Dakota, for example, 64 00:02:12,709 --> 00:02:14,390 the average age at death for 65 00:02:14,390 --> 00:02:17,300 American Indians is about 59 years. 66 00:02:17,300 --> 00:02:19,520 White population in North Dakota, 67 00:02:19,520 --> 00:02:22,084 the average age at death is closer to 79. 68 00:02:22,084 --> 00:02:25,610 So we have over 20 year disparity in 69 00:02:25,610 --> 00:02:26,870 average age at death for 70 00:02:26,870 --> 00:02:28,040 American Indians in 71 00:02:28,040 --> 00:02:29,555 the state of North Dakota. 72 00:02:29,555 --> 00:02:31,160 So how do we manage that with 73 00:02:31,160 --> 00:02:32,240 the health system that is 74 00:02:32,240 --> 00:02:33,920 so terribly underfunded. 75 00:02:33,920 --> 00:02:35,810 So because the Indian 76 00:02:35,810 --> 00:02:37,400 Health Service is underfunded, 77 00:02:37,400 --> 00:02:38,690 we cannot provide all the 78 00:02:38,690 --> 00:02:40,580 services that we need. 79 00:02:40,580 --> 00:02:43,130 So if somebody needs specialty care, 80 00:02:43,130 --> 00:02:44,270 we actually have to purchase 81 00:02:44,270 --> 00:02:46,670 those services in the private sector because 82 00:02:46,670 --> 00:02:48,455 IHS cannot afford to 83 00:02:48,455 --> 00:02:50,360 hire and retain specialists. 84 00:02:50,360 --> 00:02:52,475 So for example, if somebody has cancer, 85 00:02:52,475 --> 00:02:54,200 we can rarely provide 86 00:02:54,200 --> 00:02:55,850 cancer services within 87 00:02:55,850 --> 00:02:57,035 the Indian Health Service. 88 00:02:57,035 --> 00:02:58,130 They have to be provided 89 00:02:58,130 --> 00:02:59,465 in the private sector. 90 00:02:59,465 --> 00:03:01,715 And this really is an ethical dilemma 91 00:03:01,715 --> 00:03:03,650 and a social justice dilemma, 92 00:03:03,650 --> 00:03:06,395 as well as a policy and legal issue. 93 00:03:06,395 --> 00:03:09,095 In many ways, this is a civil rights issue. 94 00:03:09,095 --> 00:03:12,050 So, when you look at the US Constitution, 95 00:03:12,050 --> 00:03:13,580 treaties are considered the 96 00:03:13,580 --> 00:03:16,040 highest order of law in the land. 97 00:03:16,040 --> 00:03:19,370 So treaties are stronger version of 98 00:03:19,370 --> 00:03:21,125 the law even than legislation 99 00:03:21,125 --> 00:03:22,250 passed by congress 100 00:03:22,250 --> 00:03:23,330 and signed by the president. 101 00:03:23,330 --> 00:03:25,370 So there's a treaty clause 102 00:03:25,370 --> 00:03:26,930 in the US Constitution. 103 00:03:26,930 --> 00:03:29,060 And where are the only population that has 104 00:03:29,060 --> 00:03:31,415 a treaty right to health care. 105 00:03:31,415 --> 00:03:32,900 But the US government 106 00:03:32,900 --> 00:03:33,860 is just not living up to 107 00:03:33,860 --> 00:03:36,245 its treaty obligations to 108 00:03:36,245 --> 00:03:38,465 American Indians and Alaska Natives. 109 00:03:38,465 --> 00:03:39,920 So in a very practical way, 110 00:03:39,920 --> 00:03:41,450 what is the impact of that? 111 00:03:41,450 --> 00:03:44,015 I can share a story from my own family. 112 00:03:44,015 --> 00:03:48,485 In the 19 nineties and late 1980s, 113 00:03:48,485 --> 00:03:50,630 my grandmother came to live with 114 00:03:50,630 --> 00:03:53,090 us when we were in Arizona at that time. 115 00:03:53,090 --> 00:03:53,600 And again, 116 00:03:53,600 --> 00:03:55,595 where from South Dakota originally. 117 00:03:55,595 --> 00:03:57,785 And she was getting older and 118 00:03:57,785 --> 00:03:59,900 she was very frail. 119 00:03:59,900 --> 00:04:01,340 So she moved from 120 00:04:01,340 --> 00:04:03,905 South Dakota to live with us in Arizona. 121 00:04:03,905 --> 00:04:05,780 And she unfortunately had been 122 00:04:05,780 --> 00:04:07,850 a lifelong smoker and she 123 00:04:07,850 --> 00:04:08,990 we had developed a cough 124 00:04:08,990 --> 00:04:10,295 that wouldn't go away. 125 00:04:10,295 --> 00:04:12,650 So we took her to the Indian Health Service 126 00:04:12,650 --> 00:04:14,720 in Phoenix and they did 127 00:04:14,720 --> 00:04:16,010 a chest x-ray and 128 00:04:16,010 --> 00:04:17,090 it was very clear that she had 129 00:04:17,090 --> 00:04:18,620 a mass in her lungs 130 00:04:18,620 --> 00:04:20,765 and it looked like lung cancer. 131 00:04:20,765 --> 00:04:22,610 So because Indian Health Services 132 00:04:22,610 --> 00:04:24,380 so terribly underfunded, 133 00:04:24,380 --> 00:04:26,420 there was not an oncologist or 134 00:04:26,420 --> 00:04:27,650 a cancer doctor working 135 00:04:27,650 --> 00:04:29,300 within the Indian Health Service. 136 00:04:29,300 --> 00:04:31,069 So she needed to be referred 137 00:04:31,069 --> 00:04:32,615 to the private sector. 138 00:04:32,615 --> 00:04:34,880 And because of underfunding that 139 00:04:34,880 --> 00:04:37,175 referral rules within the within 140 00:04:37,175 --> 00:04:38,735 the Indian Health Service 141 00:04:38,735 --> 00:04:40,850 are such that she was not eligible 142 00:04:40,850 --> 00:04:41,990 for a referral from 143 00:04:41,990 --> 00:04:43,940 Phoenix Indian Medical Center 144 00:04:43,940 --> 00:04:45,740 because she's from South Dakota. 145 00:04:45,740 --> 00:04:47,855 So within the IHS is what's called 146 00:04:47,855 --> 00:04:50,855 purchased and referred care or PRC. 147 00:04:50,855 --> 00:04:53,075 And in order to be eligible for 148 00:04:53,075 --> 00:04:55,895 a referral from the PRC budget, 149 00:04:55,895 --> 00:04:58,670 to be referred for the services 150 00:04:58,670 --> 00:05:00,380 from your home institution 151 00:05:00,380 --> 00:05:01,790 or your home clinic. 152 00:05:01,790 --> 00:05:04,250 So we weren't able to get a referral from 153 00:05:04,250 --> 00:05:06,739 Indian Health Service out of Phoenix. 154 00:05:06,739 --> 00:05:08,660 In addition, in order 155 00:05:08,660 --> 00:05:10,310 to be eligible for Medicaid, 156 00:05:10,310 --> 00:05:12,020 we had to prove that she was living in 157 00:05:12,020 --> 00:05:13,640 Arizona for at least six months, 158 00:05:13,640 --> 00:05:14,465 but we couldn't prove it. 159 00:05:14,465 --> 00:05:14,930 We didn't put 160 00:05:14,930 --> 00:05:16,400 the electricity bill in her name. 161 00:05:16,400 --> 00:05:18,035 Her she was just living with us 162 00:05:18,035 --> 00:05:19,430 also because she 163 00:05:19,430 --> 00:05:21,530 was really a full-time mother 164 00:05:21,530 --> 00:05:22,610 and a full-time grandmother. 165 00:05:22,610 --> 00:05:23,960 She had 10 children and 166 00:05:23,960 --> 00:05:25,820 then many, many grandchildren. 167 00:05:25,820 --> 00:05:27,290 She also did not work 168 00:05:27,290 --> 00:05:29,180 her 40 quarters you have to work for 169 00:05:29,180 --> 00:05:33,260 ten years to be eligible for Social Security. 170 00:05:33,260 --> 00:05:35,150 So she was not on Social Security, 171 00:05:35,150 --> 00:05:36,620 she was not on Medicare, 172 00:05:36,620 --> 00:05:38,690 she was not eligible for Medicaid, 173 00:05:38,690 --> 00:05:39,950 and she was not eligible for 174 00:05:39,950 --> 00:05:42,140 a referral from the Indian Health Service. 175 00:05:42,140 --> 00:05:43,610 So we literally had to bring 176 00:05:43,610 --> 00:05:45,620 her back to South Dakota just to 177 00:05:45,620 --> 00:05:47,360 get a referral to be 178 00:05:47,360 --> 00:05:49,280 seen for her lung cancer. 179 00:05:49,280 --> 00:05:50,750 And in all the delays 180 00:05:50,750 --> 00:05:52,205 of getting that to occur, 181 00:05:52,205 --> 00:05:54,800 my grandmother wound up dying from 182 00:05:54,800 --> 00:05:56,390 lung cancer without 183 00:05:56,390 --> 00:05:58,550 ever seeing an oncologist. 184 00:05:58,550 --> 00:06:00,530 And she was born with a treaty 185 00:06:00,530 --> 00:06:02,300 right to health care. 186 00:06:02,300 --> 00:06:03,470 So I really look at 187 00:06:03,470 --> 00:06:05,300 underfunding of the Indian Health Service, 188 00:06:05,300 --> 00:06:07,820 not just as an academic policy issue, 189 00:06:07,820 --> 00:06:09,980 it's a very personal issue and it's 190 00:06:09,980 --> 00:06:12,575 an unethical when we think about this. 191 00:06:12,575 --> 00:06:14,900 The fact that human beings 192 00:06:14,900 --> 00:06:17,090 deserve health care when they need it. 193 00:06:17,090 --> 00:06:19,490 But also from a legal perspective, 194 00:06:19,490 --> 00:06:22,535 we have a treaty right to health services. 195 00:06:22,535 --> 00:06:24,380 And the federal government is just simply 196 00:06:24,380 --> 00:06:26,480 not living up to its obligations. 197 00:06:26,480 --> 00:06:28,040 So I'd encourage you to look into this 198 00:06:28,040 --> 00:06:30,035 more and to try to understand 199 00:06:30,035 --> 00:06:31,610 the history and dynamics of 200 00:06:31,610 --> 00:06:33,770 American Indian health policy and 201 00:06:33,770 --> 00:06:35,090 in particular funding of 202 00:06:35,090 --> 00:06:36,545 the Indian Health Service. 203 00:06:36,545 --> 00:06:37,580 And we can see how 204 00:06:37,580 --> 00:06:39,440 very directly underfunding of 205 00:06:39,440 --> 00:06:41,300 the IHS can lead 206 00:06:41,300 --> 00:06:44,480 to unnecessary suffering and early death. 207 00:06:44,480 --> 00:06:46,760 And we're seeing that play out in the data. 208 00:06:46,760 --> 00:06:48,560 So please do look into this further 209 00:06:48,560 --> 00:06:50,120 as you move forward in your careers. 210 00:06:50,120 --> 00:06:50,930 And I really appreciate 211 00:06:50,930 --> 00:06:52,280 your attention and thank 212 00:06:52,280 --> 00:06:53,330 you so much for letting me 213 00:06:53,330 --> 00:06:55,500 be a part of this series.